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Rock CF Foundation
USA
Last login : Sep 11, 2008
Views : 000
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Organization Overview
About Us
Founded and led by Emily Schaller, the Rock CF Foundation is dedicated to increasing the quality of life for people with Cystic Fibrosis. With the help of a core group of volunteers, the Foundation utilizes the arts, entertainment, fashion and fitness to support research initiatives and heighten public awareness in the fight against cystic fibrosis.
Who We Are
The Rock CF Foundation wants to rock cystic fibrosis so hard that it stands for "cure found!" Founded in 2007 in Detroit, the Rock CF Foundation is hoping to become leaders in the fight against cystic fibrosis.
Emily Schaller who founded Rock CF has cystic fibrosis and started the foundation because she wants to educate people about the number one genetic killer of children and young adults. Not enough awareness is out there so we're trying to change that and show people how CF affects the body but also what research is being done to change that.
Our Organization's Mission
Founded and led by Emily Schaller, the Rock CF Foundation is dedicated to increasing the quality of life for people with Cystic Fibrosis. With the help of a core group of volunteers, the Foundation utilizes the arts, entertainment, fashion and fitness to support research initiatives and heighten public awareness in the fight against cystic fibrosis.
Who We Serve
Patients, families, friends and anyone affected by cystic fibrosis.
Our Programs
Currently a majority of the funds we generate go straight toward research. Also our line of merchandise serves as a great way to reach out and spread awareness. In the works for late 2008/2009 are scholarships for CF students that want to study the arts & entertainment in college. A scholarship will also be set up for patients that participate in fitness and are proving that exercise is helping maintain their health.
Upcoming Events
* Emily's half marathon- June 1, Dexter to Ann Arbor Run
* City to City Ride 2008- A bike ride from Detroit to Chicago via Michigan Ave/US-12.
* Emily runs the Chicago half marathon Sept 14 & Detroit in October.
* Stay tuned for more info on Just Let Me Breathe 2009 and New Events!
Leadership Profile
The Rock CF Foundation was founded by Emily Schaller, a 26 year old patient living with cystic fibrosis (CF). Emily has been fundraising for CF ever since she can remember and decided that she will not stop until CF is cured. Emily loves the arts, entertainment and fitness. She is a drummer and is well connected in the music world which she uses to hold annual benefit concerts. Currently Emily is training to run her first half marathon (13.1 miles), this is a great feat. For the second time, this summer Emily will lead a group of bike riders from Detroit to Chicago to raise funds and spread awareness for cystic fibrosis.
Board of Directors
Jason Schaller- President
Board Members:
Kevin Borsay
Marylou Jansen
Gloria Kitchen
Year Founded : 2007
501(c)(3) Ruling Year : 2007
Volunteers : 10
Annual Income : $20,000
Amount Spent Fundraising : $500
What Sets Us Apart
Rock CF is led by someone who understands and can relate to the people we are trying to help. Because Emily takes the bull by the horns she is able to share her knowledge about CF research and educates patients and families across the country.

Music speaks on so many levels to everyone and we want to be right there to reach people about cystic fibrosis through music. We want to use the arts, entertainment, fashion and fitness to teach people about CF and include that demographic with fundraising. The entertainment industry is filled with great people that are eager to help reach a wide audience.
Objectives for This Fiscal Year
We are setting high hopes for the rest of 2008. The City to City bike ride in August is hopefully going to grow into something beyond belief.

The official online Rock CF store is being launched this summer. Customers will be able to wear their favorite organic Rock CF shirts to show their support for cystic fibrosis!
Recent Accomplishments
In March the Rock CF Foundation held the 5th Annual Just Let Me Breathe benefit show. The evening raised over $12,000 and in total this event has raised roughly $60,000.

Detroit Rocks CF Volume 2 was just released in March. This is a CD that features 16 of Detroit's best bands all rocking for CF. Topping the line up on the album are The Muggs, The Hard Lessons and Alex Winston. Volume 1 sold out (1,000 copies) so be pick up volume 2 before they're gone!

Founder Emily Schaller's story was recently followed by the Associated Press and the story was published April 27 all over the globe!
Collaboration
People We Would Like to Collaborate With
Anyone who wants to help spread awareness and raise funds for CF. Musicians, artists, athletes, actors, actresses..anyone really!
Projects We Would Like to Collaborate on
We'd love to get involved with projects that are helping the environment. We are working hard at Rock CF to run a "green" business.
Other Nonprofits We Would Like to Collaborate With
Other CF non profits, fitness and arts non profits.
Projects We Need Help On
Taking Rock CF to a national level.
Skills We Would Like to Share
We are here for support for CF families, friends and the general public. Because our founder is a CF patient living life to the fullest she is able to share her experiences with CF and how to manage life in general.
Skills We Would Like to Learn
Turning small fundraisers into big time events. We are working to grow our events and would like to learn what we need to do to learn how to do that. How to receive corporate help is something we need to learn too.
Ideas We would Like to Share
Use your knowledge to help others. If you are skilled or connected in an area that you think may help a charity or fundraising group don't be afraid to get involved. Non profits are always looking for help and volunteers so get in there and help out!


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Comments (1)
Welcome to Make The Difference Network!

I love what you are doing to address this disease. Your enthusiasm, and energy just come bounding off the pages of your Profile! I can't wait to see what kind of Wishes you are going to post.
May 19, 2008 10:33




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